May 2023

Dear KPMP Participant,

Emanuel Holley’s Insight at the All-KPMP Meeting

We were so excited to have one of our study participants, Emanuel Holley, speak at the recentAll-KPMP meeting. This meeting is attended by all members of the KPMP team.

Emanuel provided excellent feedback about his experience as a KPMP study participant. He talked about how being in the study has impacted his life. For instance, how the changes he has made to his diet improved his lab results.

He also suggested ways that KPMP could improve the participant experience, such as:

  • Provide “better kidney education and communications resources, in general.”
  • Provide “clear communications”, including this participant update letter.

Emmanuel’s perspective has been very helpful, and we’ve already acted on his recommendations. During the meeting,Emanuel told us, “I feel welcomed, I feel celebrated, I feel heard.”

Patients continue to be at the heart of what we do and why we do it. We would love to hear your perspective. If you are interested in attending one of our upcoming meetings, virtually orin-person, please let your Recruitment Site team know. They will support you. You can be involved in any way that you feel comfortable.

Upcoming All-KPMP Meetings:

  • October 4 & 5 2023 (Hyatt Bethesda)
  • Feb 27 & 28 2024 (Hyatt Bethesda)
  •  Sept 16 & 17 2024 (Hyatt Bethesda)

Tell a friend…

Do you have family, friends or co-workers who might be interested in
learning about KPMP? Please give them this link to the KPMP Introduction video:
kpmp.org/for-participants

 

Sincerely,

Clinical Data and sample Coordinating Center (CDCC)
Data Visualization Hub (DVH)
Enhanced clinical phenotyping (OP)
Healthy Reference Tissue (OP)
Indiana University - The Ohio State University (IU-OSU)
Joslin Diabetes Center/Beth Israel Deaconess Medical Center
KPMP Biomarker Measurements (OP)
New Tissue Interrogation Technologies (OP)
PREMIERE (UM-Broad-Princeton)
University of California San Francisco - Stanford University (UCSF-SU)
University of Illinois, Chicago
University of North Carolina
University of Texas Health Science Center at San Antonio - Pacific Northwest National Laboratory - European Molecular Biology Laboratory (UTHSA-PNNL-EMBL)
University of Texas Southwestern, Dallas
Washington University St. Louis
Whole Genome Sequencing (CLIA) (OP)
Natasha Wen
Natasha Wen
Natasha Wen
Research Coordinator
Nicole Marquez
Nicole Marquez
Nicole Marquez
Research Coordinator
Seanee Lefferts
Seanee Lefferts
Seanee Lefferts
Research Coordinator
Shihong Ma
Shihong Ma
Shihong Ma
Research Coordinator
Sonya Shah
Sonya Shah
Sonya Shah
Research Coordinator
Sophia Angus
Sophia Angus
Sophia Angus
Research Coordinator
Sora Lee
Sora Lee
Sora Lee
Research Coordinator
Stephanie Wofford, MS
Stephanie Wofford, MS
Stephanie Wofford, MS
Research Coordinator
Tina Vita
Tina Vita
Tina Vita
Research Coordinator
Ugochukwu Ugwouwu
Ugochukwu Ugwouwu
Ugochukwu Ugwouwu
Research Coordinator
Via Rao
Via Rao
Via Rao
Research Coordinator
Theodore Alexandov
Theodore Alexandov
Theodore Alexandov
Principal Investigator

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