May 2023

Dear KPMP Participant,

Emanuel Holley’s Insight at the All-KPMP Meeting

We were so excited to have one of our study participants, Emanuel Holley, speak at the recentAll-KPMP meeting. This meeting is attended by all members of the KPMP team.

Emanuel provided excellent feedback about his experience as a KPMP study participant. He talked about how being in the study has impacted his life. For instance, how the changes he has made to his diet improved his lab results.

He also suggested ways that KPMP could improve the participant experience, such as:

  • Provide “better kidney education and communications resources, in general.”
  • Provide “clear communications”, including this participant update letter.

Emmanuel’s perspective has been very helpful, and we’ve already acted on his recommendations. During the meeting,Emanuel told us, “I feel welcomed, I feel celebrated, I feel heard.”

Patients continue to be at the heart of what we do and why we do it. We would love to hear your perspective. If you are interested in attending one of our upcoming meetings, virtually orin-person, please let your Recruitment Site team know. They will support you. You can be involved in any way that you feel comfortable.

Upcoming All-KPMP Meetings:

  • October 4 & 5 2023 (Hyatt Bethesda)
  • Feb 27 & 28 2024 (Hyatt Bethesda)
  •  Sept 16 & 17 2024 (Hyatt Bethesda)

Tell a friend…

Do you have family, friends or co-workers who might be interested in
learning about KPMP? Please give them this link to the KPMP Introduction video:
kpmp.org/for-participants

 

Sincerely,

Clinical Data and sample Coordinating Center (CDCC)
Data Visualization Hub (DVH)
Enhanced clinical phenotyping (OP)
Healthy Reference Tissue (OP)
Indiana University - The Ohio State University (IU-OSU)
Joslin Diabetes Center/Beth Israel Deaconess Medical Center
KPMP Biomarker Measurements (OP)
New Tissue Interrogation Technologies (OP)
PREMIERE (UM-Broad-Princeton)
University of California San Francisco - Stanford University (UCSF-SU)
University of Illinois, Chicago
University of North Carolina
University of Texas Health Science Center at San Antonio - Pacific Northwest National Laboratory - European Molecular Biology Laboratory (UTHSA-PNNL-EMBL)
University of Texas Southwestern, Dallas
Washington University St. Louis
Whole Genome Sequencing (CLIA) (OP)
Ashveena Dighe, MS, MPH
Ashveena Dighe, MS, MPH
Ashveena Dighe, MS, MPH
E. Steve Woodle, MD, FACS
E. Steve Woodle, MD, FACS
E. Steve Woodle, MD, FACS
Principal Investigator
Ian de Boer, MD, MS
Ian de Boer, MD, MS
Ian de Boer, MD, MS
James C. Williams, PhD
James C. Williams, PhD
James C. Williams, PhD
Principal Investigator
Jeffrey Spraggins, PhD
Jeffrey Spraggins, PhD
Jeffrey Spraggins, PhD
Principal Investigator
Jonathan Taliercio, DO
Jonathan Taliercio, DO
Jonathan Taliercio, DO
Katy Borner, PhD
Katy Borner, PhD
Katy Borner, PhD
Lloyd Cantley, MD
Lloyd Cantley, MD
Lloyd Cantley, MD
Principal Investigator
M. Todd Valerius
M. Todd Valerius
M. Todd Valerius
Minnie Sarwal, MD, PhD
Minnie Sarwal, MD, PhD
Minnie Sarwal, MD, PhD
Principal Investigator
Nils Gehlenborg, PhD
Nils Gehlenborg, PhD
Nils Gehlenborg, PhD
Robyn McClelland, PhD
Robyn McClelland, PhD
Robyn McClelland, PhD
Sean Mooney
Sean Mooney
Sean Mooney
Robert Toto, MD
Robert Toto, MD
Robert Toto, MD
Principal Investigator
Jeff Hodgin, MD
Jeff Hodgin, MD
Jeff Hodgin, MD
Principal Investigator
Chris Anderton
Chris Anderton
Chris Anderton
Principal Investigator
Ravi Iyengar, PhD
Ravi Iyengar, PhD
Ravi Iyengar, PhD
Principal Investigator
Jonathan Himmelfarb, MD
Jonathan Himmelfarb, MD
Jonathan Himmelfarb, MD
Principal Investigator
Nir Hacohen, PhD
 Nir Hacohen, PhD
Nir Hacohen, PhD
Principal Investigator
Kumar Sharma, MD, FAHA
Kumar Sharma, MD, FAHA
Kumar Sharma, MD, FAHA
Principal Investigator
Jonathan Barasch, MD, PhD
 Jonathan Barasch, MD, PhD
Jonathan Barasch, MD, PhD
Principal Investigator
Amy Mottl, MD, MPH, FASN
Amy Mottl, MD, MPH, FASN
Amy Mottl, MD, MPH, FASN
Principal Investigator
Ana Ricardo, MD, MPH, MS
Ana Ricardo, MD, MPH, MS
Ana Ricardo, MD, MPH, MS
Principal Investigator
Andrew Bomback, MD, MPH
Andrew Bomback, MD, MPH
Andrew Bomback, MD, MPH
Principal Investigator
Chirag Parikh, MD, PhD
Chirag Parikh, MD, PhD
Chirag Parikh, MD, PhD
Principal Investigator
Dan Hall, MD, MDiv, MHSc, FACS
Dan Hall, MD, MDiv, MHSc, FACS
Dan Hall, MD, MDiv, MHSc, FACS
Principal Investigator
Dennis Moledina, MBBS, PhD
Dennis Moledina, MBBS, PhD
Dennis Moledina, MBBS, PhD
Principal Investigator
Elena Hsieh, MD
Elena Hsieh, MD
Elena Hsieh, MD
Principal Investigator
Emilio Poggio, MD
Emilio Poggio, MD
Emilio Poggio, MD
Principal Investigator
F. Perry Wilson, MD
F. Perry Wilson, MD
F. Perry Wilson, MD
Principal Investigator
Frank C. "Chip" Brosius, III, MD
Frank C. "Chip" Brosius, III, MD
Frank C. "Chip" Brosius, III, MD
Principal Investigator
Girish Nadkarni, MD
Girish Nadkarni, MD
Girish Nadkarni, MD
Principal Investigator
James Lash, MD
James Lash, MD
James Lash, MD
Principal Investigator
John O'Toole, MD
John O'Toole, MD
John O'Toole, MD
Principal Investigator
John Sedor, MD
John Sedor, MD
John Sedor, MD
Principal Investigator
Joshua Thurman, MD
Joshua Thurman, MD
Joshua Thurman, MD
Principal Investigator
Kirk Campbell, MD
Kirk Campbell, MD
Kirk Campbell, MD
Principal Investigator
Krzysztof Kiryluk, MD
Krzysztof Kiryluk, MD
Krzysztof Kiryluk, MD
Principal Investigator
Luiza Caramori, MD
Luiza Caramori, MD
Luiza Caramori, MD
Principal Investigator
Miguel Vasquez, MD
Miguel Vasquez, MD
Miguel Vasquez, MD
Principal Investigator
Patrick Nachman, MD
Patrick Nachman, MD
Patrick Nachman, MD
Principal Investigator
Paul Palevsky, MD
Paul Palevsky, MD
Paul Palevsky, MD
Principal Investigator
Steven Coca, DO
Steven Coca, DO
Steven Coca, DO
Principal Investigator
Steven Menez, MD, MHS
Steven Menez, MD, MHS
Steven Menez, MD, MHS
Principal Investigator
Sushrut Waikar, MD, MPH
Sushrut Waikar, MD, MPH
Sushrut Waikar, MD, MPH
Principal Investigator
Sylvia Rosas, MD
Sylvia Rosas, MD
Sylvia Rosas, MD
Principal Investigator
Vijay Kakade, PhD
Vijay Kakade, PhD
Vijay Kakade, PhD
Principal Investigator
Bijin Thajudeen, MD
Bijin Thajudeen, MD
Bijin Thajudeen, MD
Co-Investigator
David Beyda, MD
David Beyda, MD
David Beyda, MD
Co-Investigator
Erika Bracamonte, MD
Erika Bracamonte, MD
Erika Bracamonte, MD
Co-Investigator
Evan Zeitler, MD
Evan Zeitler, MD
Evan Zeitler, MD
Principal Investigator
Gregory Woodhead, MD, PhD
Gregory Woodhead, MD, PhD
Gregory Woodhead, MD, PhD
Co-Investigator
Isaac Stillman
Isaac Stillman
Isaac Stillman
Co-Investigator
Jerica Berge, PhD
Jerica Berge, PhD
Jerica Berge, PhD
Co-Investigator
Joji Tokita, MD
Joji Tokita, MD
Joji Tokita, MD
Co-Investigator
Lili Chan, MD
Lili Chan, MD
Lili Chan, MD
Co-Investigator
Oyedele Adeyi, MD
Oyedele Adeyi, MD
Oyedele Adeyi, MD
Co-Investigator
Paul Drawz, MD
Paul Drawz, MD
Paul Drawz, MD
Co-Investigator
Roy Chaudhury, MD, PHD, FASN
Roy Chaudhury, MD, PHD, FASN
Roy Chaudhury, MD, PHD, FASN
Principal Investigator
Sami Safadi, MD
Sami Safadi, MD
Sami Safadi, MD
Co-Investigator
Siobhan Flanagan, MD
Siobhan Flanagan, MD
Siobhan Flanagan, MD
Co-Investigator
Susan Wolf, JD
Susan Wolf, JD
Susan Wolf, JD
Co-Investigator
Tasma Harindhanavudhi
Tasma Harindhanavudhi
Tasma Harindhanavudhi
Co-Investigator
Yanli Ding, MD/PhD
Yanli Ding, MD/PhD
Yanli Ding, MD/PhD
Co-Investigator
Noralinda Viloria
Noralinda Viloria
Noralinda Viloria
Lab Coordinator
Pam Corona, MD, MS
Pam Corona, MD, MS
Pam Corona, MD, MS
Program Manager
Kun Zhang, PhD
Kun Zhang, PhD
Kun Zhang, PhD
Principal Investigator
Zoltan Laszik, MD, PhD
Zoltan Laszik, MD, PhD
Zoltan Laszik, MD, PhD
Principal Investigator
Matthias Kretzler, MD
Matthias Kretzler, MD
Matthias Kretzler, MD
Principal Investigator
Raghavan Murugan, MD, MS, FRCP, FCCM
Raghavan Murugan, MD, MS, FRCP, FCCM
Raghavan Murugan, MD, MS, FRCP, FCCM
Principal Investigator
Pierre Dagher, MD
Pierre Dagher, MD
Pierre Dagher, MD
Principal Investigator
Tarek Ashkar (El-Achkar), MD
Tarek Ashkar (El-Achkar), MD
Tarek Ashkar (El-Achkar), MD
Principal Investigator
Sanjay Jain, MD, PhD
Sanjay Jain, MD, PhD
Sanjay Jain, MD, PhD
Principal Investigator
Olga Troyanskaya, PhD
Olga Troyanskaya, PhD
Olga Troyanskaya, PhD
Principal Investigator
Adam Burgess
Adam Burgess
Adam Burgess
Research Coordinator
Amada Renteria
Amada Renteria
Amada Renteria
Research Coordinator
Angela M. Victoria-Castro, MD
Angela M. Victoria-Castro, MD
Angela M. Victoria-Castro, MD
Research Coordinator
Anne Froment, MSW
Anne Froment, MSW
Anne Froment, MSW
Research Coordinator
Ashley Burg
Ashley Burg
Ashley Burg
Research Coordinator
Baltazar Campos, MPH
Baltazar Campos, MPH
Baltazar Campos, MPH
Research Coordinator
Cecilia Berrouet
Cecilia Berrouet
Cecilia Berrouet
Research Coordinator
Dane Munar
Dane Munar
Dane Munar
Research Coordinator
Dhatri Kakarla
Dhatri Kakarla
Dhatri Kakarla
Research Coordinator
Diana Sendrey, RN
Diana Sendrey, RN
Diana Sendrey, RN
Research Coordinator
Eunice Carmona Powell
Eunice Carmona Powell
Eunice Carmona Powell
Research Coordinator
Frida Calerone
Frida Calerone
Frida Calerone
Research Coordinator
German Varela, MD
German Varela, MD
German Varela, MD
Research Coordinator
Gina Koch
Gina Koch
Gina Koch
Research Coordinator
Ingrid Onul
Ingrid Onul
Ingrid Onul
Research Coordinator
Isabel Donohoe
Isabel Donohoe
Isabel Donohoe
Research Coordinator
Jen Hernandez
Jen Hernandez
Jen Hernandez
Research Coordinator
Jenny Molina-Guzman
Jenny Molina-Guzman
Jenny Molina-Guzman
Research Coordinator
Katherine Mendoza
Katherine Mendoza
Katherine Mendoza
Research Coordinator
Leslie Cooperman, RN
Leslie Cooperman, RN
Leslie Cooperman, RN
Research Coordinator
Marissa Patel
Marissa Patel
Marissa Patel
Research Coordinator
Mary Mac Collie
Mary Mac Collie
Mary Mac Collie
Research Coordinator
Melissa Rubinsky
Melissa Rubinsky
Melissa Rubinsky
Nurse Practitioner
Melissa Shaw
Melissa Shaw
Melissa Shaw
Research Coordinator
Nancy Wang
Nancy Wang
Nancy Wang
Research Coordinator
Natalie Meza
Natalie Meza
Natalie Meza
Research Coordinator

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