January 2022

 

Dear KPMP Participant,

We hope you have been well since we last touched base. KPMP continues to be forever grateful to you for signing up and contributing to this life-changing research. Thank you. Your shared kidney tissue, blood and urine samples, information and time are invaluable. In this letter we’d like to share some updates with you about the steps we are taking to build a KPMP participant community.

On October 7th, 2021, KPMP had its first Participant Town Hall. During this virtual event, we heard from researchers about what they are learning from your biopsies and data, and we heard from KPMP participants around the country about what participating in the study means to them. If you missed the Town Hall and would like to watch the event, please contact us and we can make that happen. We plan to hold our next Town Hall in May 2022. We are happy to help you participate in the Town Hall and record a study participant video if you are interested in doing so.

Last year, our KPMP software team released the KPMP Participant Portal. This is a free and secure, web-based tool like a digital microscope, that lets you see images created from your own KPMP kidney biopsy. We encourage you to sign up for this tool. Please call us, or we can help you sign up at your next visit.

 

KPMP Participant Portal

KPMP recently published an article about the benefits and risks of participating in KPMP in the December 3, 2021 edition of the American Journal of Kidney Disease (AJKD). The article, entitled, A Participant-Centered Approach to Understanding Risks and Benefits of Participation in Research Informed by the Kidney Precision Medicine Project, describes the ethical approach our study team took to ensuring the benefits were maximized for our heroic participants. We published this article with the goal that other research studies will use it as a model in their own approaches to enrollment. The article is included with this letter.

Please share this letter with your family and friends.  If they want to learn more, use this link to the KPMP Introduction video. 

Your contribution to KPMP has a meaningful impact.  The KPMP would not exist without volunteers, like you, who have undergone a kidney biopsy for this study. Thank you. We hope you enjoyed learning about the tools and social support we have available to share your KPMP experience. We look forward to seeing you at your next visit. Please contact us if you have any questions or comments. 

Sincerely,

Amy Mottl
Amy Mottl
Amy Mottl
Principal Investigator
E. Steve Woodle, MD, FACS
E. Steve Woodle, MD, FACS
E. Steve Woodle, MD, FACS
Principal Investigator
James C. Williams, PhD
James C. Williams, PhD
James C. Williams, PhD
Principal Investigator
Jeffrey Spraggins
Jeffrey Spraggins
Jeffrey Spraggins
Principal Investigator
Lloyd Cantley
Lloyd Cantley
Lloyd Cantley
Principal Investigator
Minnie Sarwal, MD, PhD
Minnie Sarwal, MD, PhD
Minnie Sarwal, MD, PhD
Principal Investigator
Patrick Nachman
Patrick Nachman
Patrick Nachman
Principal Investigator
Robert Toto, MD
Robert Toto, MD
Robert Toto, MD
Principal Investigator
Jeff Hodgin, MD
Jeff Hodgin, MD
Jeff Hodgin, MD
Principal Investigator
Chris Anderton
Chris Anderton
Chris Anderton
Principal Investigator
Ravi Iyengar, PhD
Ravi Iyengar, PhD
Ravi Iyengar, PhD
Principal Investigator
Jonathan Himmelfarb, MD
Jonathan Himmelfarb, MD
Jonathan Himmelfarb, MD
Principal Investigator
Brad Rovin, MD
Brad Rovin, MD
Brad Rovin, MD
Principal Investigator
Nir Hacohen, PhD
 Nir Hacohen, PhD
Nir Hacohen, PhD
Principal Investigator
Kumar Sharma, MD, FAHA
Kumar Sharma, MD, FAHA
Kumar Sharma, MD, FAHA
Principal Investigator
Jonathan Barasch, MD, PhD
 Jonathan Barasch, MD, PhD
Jonathan Barasch, MD, PhD
Principal Investigator
Ana Ricardo
Ana Ricardo
Ana Ricardo
Principal Investigator
Andrew Bomback, MD, MPH
Andrew Bomback, MD, MPH
Andrew Bomback, MD, MPH
Principal Investigator
Chip Brosius
Chip Brosius
Chip Brosius
Principal Investigator
Chirag Parikh, MD, PhD
Chirag Parikh, MD, PhD
Chirag Parikh, MD, PhD
Principal Investigator
Dan Hall
Dan Hall
Dan Hall
Principal Investigator
Dennis Moledina, MBBS, PhD
Dennis Moledina, MBBS, PhD
Dennis Moledina, MBBS, PhD
Principal Investigator
Elena Hsieh
Elena Hsieh
Elena Hsieh
Principal Investigator
Emilio Poggio, MD
Emilio Poggio, MD
Emilio Poggio, MD
Principal Investigator
F. Perry Wilson, MD
F. Perry Wilson, MD
F. Perry Wilson, MD
Principal Investigator
Girish Nadkarni
Girish Nadkarni
Girish Nadkarni
Principal Investigator
James Lash
James Lash
James Lash
Principal Investigator
John O'Toole, MD
John O'Toole, MD
John O'Toole, MD
Principal Investigator
John Sedor, MD
John Sedor, MD
John Sedor, MD
Principal Investigator
Jonathan Taliercio, MD
Jonathan Taliercio, MD
Jonathan Taliercio, MD
Principal Investigator
Joshua Thurman
Joshua Thurman
Joshua Thurman
Principal Investigator
Kirk Campbell
Kirk Campbell
Kirk Campbell
Principal Investigator
Krzysztof Kiryluk, MD
Krzysztof Kiryluk, MD
Krzysztof Kiryluk, MD
Principal Investigator
Luiza Caramori
Luiza Caramori
Luiza Caramori
Principal Investigator
Matthew Rosengart, MD, MPH
Matthew Rosengart, MD, MPH
Matthew Rosengart, MD, MPH
Principal Investigator
Miguel Vasquez, MD
Miguel Vasquez, MD
Miguel Vasquez, MD
Principal Investigator
Paul Palevsky, MD
Paul Palevsky, MD
Paul Palevsky, MD
Principal Investigator
Steven Coca
Steven Coca
Steven Coca
Principal Investigator
Steven Menez, MD, MHS
Steven Menez, MD, MHS
Steven Menez, MD, MHS
Principal Investigator
Sushrut Waikar, MD, MPH
Sushrut Waikar, MD, MPH
Sushrut Waikar, MD, MPH
Principal Investigator
Sylvia Rosas, MD
Sylvia Rosas, MD
Sylvia Rosas, MD
Principal Investigator
Vijay Kakade
Vijay Kakade
Vijay Kakade
Principal Investigator
Noralinda Viloria
Noralinda Viloria
Noralinda Viloria
Lab Coordinator
Pam Corona, MD, MS
Pam Corona, MD, MS
Pam Corona, MD, MS
Program Manager
Kun Zhang, PhD
Kun Zhang, PhD
Kun Zhang, PhD
Principal Investigator
Zoltan Laszik, MD, PhD
Zoltan Laszik, MD, PhD
Zoltan Laszik, MD, PhD
Principal Investigator
Matthias Kretzler, MD
Matthias Kretzler, MD
Matthias Kretzler, MD
Principal Investigator
Raghavan Murugan, MD, MS, FRCP, FCCM
Raghavan Murugan, MD, MS, FRCP, FCCM
Raghavan Murugan, MD, MS, FRCP, FCCM
Principal Investigator
Pierre Dagher, MD
Pierre Dagher, MD
Pierre Dagher, MD
Principal Investigator
Tarek Ashkar (El-Achkar), MD
Tarek Ashkar (El-Achkar), MD
Tarek Ashkar (El-Achkar), MD
Principal Investigator
Sanjay Jain, MD, PhD
Sanjay Jain, MD, PhD
Sanjay Jain, MD, PhD
Principal Investigator
Olga Troyanskaya, PhD
Olga Troyanskaya, PhD
Olga Troyanskaya, PhD
Principal Investigator
Adam Burgess
Adam Burgess
Adam Burgess
Research Coordinator
Alan Xu
Alan Xu
Alan Xu
Research Coordinator
Amada Renteria
Amada Renteria
Amada Renteria
Research Coordinator
Angela M. Victoria-Castro, MD
Angela M. Victoria-Castro, MD
Angela M. Victoria-Castro, MD
Research Coordinator
Ashley Burg
Ashley Burg
Ashley Burg
Research Coordinator
Baltazar Campos
Baltazar Campos
Baltazar Campos
Research Coordinator
Cecilia Berrouet
Cecilia Berrouet
Cecilia Berrouet
Research Coordinator
Dane Munar
Dane Munar
Dane Munar
Research Coordinator
Diana Sendrey, RN
Diana Sendrey, RN
Diana Sendrey, RN
Research Coordinator
Eunice Carmona Powell
Eunice Carmona Powell
Eunice Carmona Powell
Research Coordinator
Frida Calerone
Frida Calerone
Frida Calerone
Research Coordinator
German Varela, MD
German Varela, MD
German Varela, MD
Research Coordinator
Ingrid Onul
Ingrid Onul
Ingrid Onul
Research Coordinator
Isabel Donohoe
Isabel Donohoe
Isabel Donohoe
Research Coordinator
Karla Mehl, MD
Karla Mehl, MD
Karla Mehl, MD
Research Coordinator
Katherine Mendoza
Katherine Mendoza
Katherine Mendoza
Research Coordinator
Lauren Bernard
Lauren Bernard
Lauren Bernard
Research Coordinator
Leslie Cooperman, RN
Leslie Cooperman, RN
Leslie Cooperman, RN
Research Coordinator
Melissa Shaw
Melissa Shaw
Melissa Shaw
Research Coordinator
Nancy Wang
Nancy Wang
Nancy Wang
Research Coordinator
Natalie Meza
Natalie Meza
Natalie Meza
Research Coordinator
Natasha Wen
Natasha Wen
Natasha Wen
Research Coordinator
Neil Roy, PhD
Neil Roy, PhD
Neil Roy, PhD
Research Coordinator
Nicole Marquez
Nicole Marquez
Nicole Marquez
Research Coordinator
Sarah Chen
Sarah Chen
Sarah Chen
Research Coordinator
Shihong Ma
Shihong Ma
Shihong Ma
Research Coordinator
Stephanie Wofford, MS
Stephanie Wofford, MS
Stephanie Wofford, MS
Research Coordinator
Tina Vita
Tina Vita
Tina Vita
Research Coordinator
Ugochukwu Ugwouwu
Ugochukwu Ugwouwu
Ugochukwu Ugwouwu
Research Coordinator
Theodore Alexandov
Theodore Alexandov
Theodore Alexandov
Principal Investigator
Anne Froment
Anne Froment
Anne Froment
Research Coordinator
Ashley Wang
Ashley Wang
Ashley Wang
Research Coordinator
Cathy Bagne
Cathy Bagne
Cathy Bagne
Research Coordinator
Fernanda Ochoa Toro
Fernanda Ochoa Toro
Fernanda Ochoa Toro
Research Coordinator
Jen Hernandez
Jen Hernandez
Jen Hernandez
Research Coordinator
Marissa Patel
Marissa Patel
Marissa Patel
Research Coordinator
Sara Kelley
Sara Kelley
Sara Kelley
Research Coordinator
Seanee Lefferts
Seanee Lefferts
Seanee Lefferts
Research Coordinator
Via Rao
Via Rao
Via Rao
Research Coordinator

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