Research Coordinators Lead KPMP Manuscript on Participant Experience in Kidney Biopsies

December 14, 2023

On October 23rd of 2023, the Clinical Journal of the American Society of Nephrology (CJASN) published a manuscript titled, “Participant Experience with Protocol Research Kidney Biopsies in the Kidney Precision Medicine Project”.

What sets this study apart is not just the significance of its findings, but also the fact that it was co-led by research coordinators, Angela Victoria-Castro, MD, MSc from Yale University and Celia Pamela Corona-Villalobos, MD, MS from Johns Hopkins University, marking a significant achievement in the field.

The manuscript, under the guidance of Katherine Tuttle, MD,FASN, FACP, FNKF, delves into the crucial aspect of participant experiences during protocol research kidney biopsies within the KPMP. “KPMP has a core value of patients first. Understanding their experience is fundamental to all other knowledge generation and investigations”, says Katherine as she shares what inspired this work.

The study sheds light on the patient perspective, providing valuable insights that can enhance the understanding of the impact of such procedures on individuals involved in the research.

Key Findings from the Manuscript

The research explores various dimensions of the participant experience, including the physical and emotional aspects of undergoing protocol research kidney biopsies. The findings offer a comprehensive understanding of the challenges and benefits associated with these procedures, potentially influencing future approaches in kidney precision medicine and research.

To access the complete manuscript and dive into the intricacies of the research, interested readers can visit this link.

Innovative CJASN Podcasts in English and Spanish

In an effort to make the research findings more accessible to a wider audience, the CJASN has released a podcast where listeners can hear Angela and Pam elaborate on the main findings from their team’s work. Remarkably, these podcasts are available in both English and Spanish, with the Spanish-language podcast being the first of its kind in CJASN.

“As a Latina”, Angela expresses, “it is truly an honor to be able to share these findings with the Spanish-speaking community.” She shares how, “this Spanish podcast is a small example of how diverse our KPMP consortium is, where researchers at different stages of their career, scientists from different disciplines and altruistic patients work together as a team.”

To tune in and better understand the participant experience in the KPMP, listeners can access the episodes on Apple Podcasts: English Podcast | Spanish Podcast.

Celebrating Research Coordinators’ Leadership

Angela and Pam’s leadership in spearheading this research marks a significant milestone. Research coordinators are the unsung heroes behind many groundbreaking studies, and their pivotal role in driving the narrative of this manuscript highlights the importance of recognizing and celebrating their contributions.

This accomplishment contributes to the body of knowledge in kidney precision medicine and underscores the collaborative nature of scientific research, where individuals in various roles play a vital part in advancing our understanding of complex medical issues.

The publication of this manuscript and the accompanying podcasts not only advance the field of kidney precision medicine but also serve as a testament to the dedication and expertise of research coordinators, Angela Victoria-Castro and Celia Pamela Corona-Villalobos. Their leadership in this project sets a positive example for the future of collaborative and patient-centered research.

Thank You, KPMP Participants

In Pam’s expression of gratitude, she acknowledges, “Thanks to our participants, KPMP is building the kidney tissue atlas and aims to develop new state-of-the-art technologies to one day reduce the global health burden of acute and chronic kidney disease.” Patient altruism remains essential as KPMP continues to move these groundbreaking initiatives forward – it could not be done without such selfless participants.